About Kaitlyn

Kaitlyn Langstaff was a nine year old 4th grader from Saratoga, California.  In April of 2002 Kaitlyn was diagnosed with Toxic Epidermal Necrolysis, a severe form of Stevens Johnson Syndrome.  A rare disease, it attacks the skin and mucous membranes as the immune system turns on itself, forming blisters and lesions throughout the body that resemble second-degree burns. The mortality rate from this disease is very high. Kaitlyn was hospitalized for 110 days.

In Kaitlynís case, doctors believe the cause was an extreme reaction to Childrenís Motrin*. Kaitlynís bout with Toxic Epidermal Necrolysis and Stevens Johnson Syndrome left her blind and unable to speak, and caused permanent and massive scar tissue in her lungs and airway.  She had a tracheotomy in her neck and required constant oxygen just to breathe. She could only eat small amounts through her mouth, and had a feeding tube in her stomach to provide daily nutrition.

Despite all of this Kaitlyn remained a happy and inspirational child. She attended her local elementary school with a Health Aide by her side.  She was elected to Student Council, she participated in Brownie Girl Scouts, and the YMCA Indian Princesses, learned to read and write Braille and enjoyed spending time with her friends listening to music and Described Video Services (DVS) videotapes.  She also wrote poetry.  Kaitlynís poems dealt with her desire to be ďa normal kid.Ē  Her words have inspired many people around the world.

The Progression of
Toxic Epidermal Necrolysis and
Stevens Johnson Syndrome

4 days prior to her illness

4 days into her illness

10 days into her illness

39 days into her illness

17 days into her illness

69 days into her illness

110 days into her illness,
Kaitlyn Comes Home!

One year after her illness (she is hiding her trach with her hands)

For more photographs of Kaitlyn go to Kaitlynís Photo Gallery

* A lawsuit claiming the drug maker, McNeil Consumer & Specialty Pharmaceuticals and Johnson & Johnson failed to warn of potentially fatal reactions to Children's Motrin has settled to the mutual satisfaction of the parties.

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